How we expand our impactįirst, we build a model that can be replicated for every rare disease fight. It is up to us to bring ALS out of the shadows and teach others that taking action for cures can be as simple as telling a neighbor that ALS is deadly and impacts every community. In order to make real, expeditious progress we must change that. Few know what it is and that it can affect anyone, anywhere, at any age. Each of us can speed up our timeline toward cures. Engagementįaster progress toward cures and better health advocacy require building a community in which everyone is empowered and has an integral role in leading the movement. ResourcesĪt I AM ALS, we built a single entry point to help connect patients and their loved ones to existing resources while delivering critical new tools to ensure care and support is there for every step on the ALS journey.

Hope transformed into a movement by the dozens of partners, old and new, who share our unceasing drive to make change real for those living with ALS. Our story is hope borne from recent scientific developments. Together, you and me, we are going to cure ALS. My ALS story, however, will not have a typical ending.

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